Tools for managing your lupus

Your Keep Up The Fight Against Lupus treatment journal

As part of your enrollment in the A.S.A.P. program, you’ll receive a Keep Up the Fight Against Lupus treatment journal. By keeping this journal, you’ll be taking the first step toward better managing your lupus.

Your journal will:

  • Make it easier for you and your doctor to monitor your progress
  • Help you and your doctor understand any problems you may be having with your treatment
  • Help you stay on track with your treatment regimen

It’s important to record any side effects or symptoms you experience so you can discuss them with your doctor.

Stay On Track

Your treatment journal is included in your Keep Up the Fight Against Lupus welcome kit.

Relax, visualize, de-stress

When faced with something that makes us nervous—like starting on a new treatment or taking injections—our bodies react in a way that tries to protect us. These reactions include increased heart rate, tensing up and sweating. Fortunately, our bodies also have a natural “relaxation response” that calms us down. You can trigger this response by doing a calming activity, like breathing deeply.

Here are some tips for relaxing:

  • Breathe: Stop what you’re doing for a few minutes. Sit in a relaxed position with your feet on the floor. Close your eyes. Take a slow breath in. Hold for 4 to 5 seconds. Slowly breathe out. Repeat at least 4 times. If any nervous thoughts come to mind, turn your mind back to your breathing.
  • Listen: Close your eyes and focus on what you’re hearing. What sounds are in the room? Ignore all thoughts that come up and just listen.
  • Look: Find a picture you find relaxing—a vacation photo, nature scene, or picture of a loved one. Spend a few minutes thinking about how relaxed and happy the photo makes you feel.
  • Play: If you have a pet, play with it for a few minutes. Pets have been shown to have a calming influence. Or do an activity you enjoy, like listening to music.

A guide to talking with your doctor

It’s important to ask the right questions when considering another treatment option. This guide will help you make a list of some important things you’ll want to ask your doctor about Acthar.

Important Safety Information

Who should  NOT take Acthar?

You should not take Acthar if you have: